Facing a life of chronic illness with grace, determination, and courage might seem like an impossible feat. But Natalie Robinson is here to prove otherwise. In this episode, she candidly shares about community, accomplishments, and the personal choices she makes as she navigates Nephrotic Syndrome.
(2:17) How Natalie and Andi met…
(6:26) Natalie shares where she is now and where she grew up…
(9:45) Diagnosis and its impact on where her family settled… “My mom really saw that early on, she needed to be with her family in Los Angeles while figuring out what was wrong with her firstborn child... So that's really what I think motivated the move out west, just that bigger community.”
(14:22) Boundaries, protections, and support systems…
(16:47) Explaining an illness to a little girl…
(19:29) The theory on chewing purple bubblegum…
(25:18) “A lot of people who have a chronic illness as a child say that they don't remember being sick, but they remember being loved.”—Andi
(28:37) Cellcept, high school, and feeling good…
(29:23) Two gold nuggets…
(31:10) “It's not a no, but it's a how.” Problem-solving when you have Nephrotic Syndrome…
(35:28) Social stress and relapse…
(38:34) Telling or not telling…
(47:56) Keeping life in balance, and accomplishments despite Nephrotic Syndrome…
(52:12) Advice from Natalie…